Quinn Madeleine Foundation 5th Annual 5K

Hello Friends & Family! 

I am asking for your support as I set out to run for my friends Eileen and Brett who have turned a family tragedy into something positive for other families. When their baby girl was diagnosed with a rare genetic disease and ultimately passed away from it, they decided to create the Quinn Madelaine Foundation.  The Quinn Madeleine Foundation's mission is to aid in the prevention of - and support research on treatment and a cure for - Niemann-Pick Disease Type A (also known as ASMD), and to facilitate memorable experiences for children under age 3 who have been diagnosed with a terminal metabolic disorder. 

The Quinn Madeleine Foundation has established the first-ever Niemann-Pick diagnostic carrier screening program Aiming to eradicate fatal ASM. The foundation has partnered with Baby Genes to create a diagnostic carrier screening program for at-risk individuals.

The Foundation is a wish granting organizations and helps families create lasting memories. For instance Cenzy and family were sent on an RV trip to the Grand Canyon, Melle S. swam with the dolphins in the Caribbean.  Click the link below to learn more.  Each story is truly inspiring.

http://www.quinnmadeleine.org/quinns-list-kids.html

Please consider making a donation.  Any amount will be greatly appreciated.  The organization is entirely volunteer-run, allowing 100% of proceeds to go toward fulfilling their mission.

You can use the below link to read about Quinn's story and to learn more about the foundation.

http://www.quinnmadeleine.org/quinns-story.html

Thank you for your support!

Janessa